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Showing posts from January, 2011

Amphoteracin

spellling all wrong.  so on my recent bronch (6 months woot woot), they found a teeny tiny bit of aspirtghillis infection. So, I have to take Amphotericin nebs, which is you don't recall, is the nasty yellow foamy neb from right after tx, that has a weird consistency and sorta sputters out of the neb at the beginning and end and if you're not careful, it stains stuff. Have any of you taken it later after tx? for how long and what were your side effects? thx! cg

Re: A CF question from another CFer

Little known fact regarding CG: I get a lot of emails. I love it! Keep 'em coming. One writer gave me permission to publish her email and my response, so here goes! (PS Thanks JK for helping me blind it real good!) Hi [new internet cf tx buddy!], and nice to hear you. First, let me say that I am sorry to hear that you have been listed for transplant, though it may be the beginning of a new life for you- so on the other hand, congratulations! Where are you thinking of listing - which hospital? I had my surgery on 7/27/10, so six months ago tomorrow!  My evaluation was a little different than most because I started the proess with an appointment and basic testing, pulmonary function tests and blood test, etc., and then I became quite ill and the rest of my eval. was pushed along more quickly. Most centers require a lot of blood tests (I had 19 viles at Cleveland Clinic), chest xray, chest CT, bone density scan, up-to-date dental and gyn records for the ladies, and an assessmen

Bellingham teen remembered for being upbeat despite illness - Milford, MA - The Milford Daily News

Bellingham teen remembered for being upbeat despite illness - Milford, MA - The Milford Daily News