tag:blogger.com,1999:blog-1836248337575892827.post2647580014533362695..comments2023-12-24T06:51:25.033-05:00Comments on Cystic Gal: Next Time I Hear "You Shouldn't Meet Others with CF" . . .Cystic Galhttp://www.blogger.com/profile/11917081885417514672noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-1836248337575892827.post-1420286515864267902010-07-27T20:46:07.944-04:002010-07-27T20:46:07.944-04:00I have blogged about this exact subject. . . Mysel...I have blogged about this exact subject. . . Myself and my close friends who had the PRIVILAGE to attend CF camp much of my youth feel bad for the next generation of CFers. I would not exchange one minute of CF camp and friendships and support for 'less infections'. I agree that we can pick up 'bugs' from hospitals just as likely as from another CF patient! <br /><br />It's not fun thinking no one understands you and the internet helps but it's not the same as living, breathing, real life encounter with a fellow Cystic! :) Much love!Jamiehttps://www.blogger.com/profile/16443223033562968398noreply@blogger.comtag:blogger.com,1999:blog-1836248337575892827.post-46957235701753136362010-07-26T12:51:46.686-04:002010-07-26T12:51:46.686-04:00I'm going to the CFRI Retreat this year! I wen...I'm going to the CFRI Retreat this year! I went to the CFRI camp from 1984-1994 too. Then I got all busy with college and work and stuff. Anyway, I'm so with you. <br /><br />There are guidelines now though. No MRSA cultured for 2 years and no b. cepacia at all. And no pan resistance. Since I only have PA and I'm still susceptible to some abx I can go. Yippee!Tarahttps://www.blogger.com/profile/00305645531219980595noreply@blogger.comtag:blogger.com,1999:blog-1836248337575892827.post-76292474808396790402010-07-25T22:15:11.715-04:002010-07-25T22:15:11.715-04:00I'm with you. We have "one of those"...I'm with you. We have "one of those" CFers around here who didn't want to meet me, but likes to call at all times of the day to talk about fundraising. I don't give a rat's butt about fundraising while I'm up to my neck in HTML and CSS code, but I'd take a couple of hours to go meet you at Panera for a smoothie and make a *real* connection. Wear a mask if *you* want to and stop being so paranoid.<br /><br />/end rantJesse Petersen (CF Fatboy)https://www.blogger.com/profile/13300381673876261511noreply@blogger.comtag:blogger.com,1999:blog-1836248337575892827.post-30076370281300018422010-07-25T11:01:18.138-04:002010-07-25T11:01:18.138-04:00AMEN ;)AMEN ;)Amyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-1836248337575892827.post-27262137254090629742010-07-25T08:18:33.362-04:002010-07-25T08:18:33.362-04:00I like ranty CysticGal. What's more, all the ...I like ranty CysticGal. What's more, all the rants make sense - they're not illogical, angry for angry's sake tirades, they're legit!hmell75https://www.blogger.com/profile/13592513140896910334noreply@blogger.comtag:blogger.com,1999:blog-1836248337575892827.post-53170525758198829182010-07-25T04:14:45.830-04:002010-07-25T04:14:45.830-04:00I'm with you on this one CG! I even had anothe...I'm with you on this one CG! I even had another adult CFer walk along side of Lucy and her Team this year at the GS walk. We should be united (safely) and fight CF together! :)Lucy's momhttps://www.blogger.com/profile/06126095986715998848noreply@blogger.comtag:blogger.com,1999:blog-1836248337575892827.post-70290711677364353632010-07-25T00:22:19.950-04:002010-07-25T00:22:19.950-04:00And look,you're not dead yet!! ha?And look,you're not dead yet!! ha?Beth Petershttps://www.blogger.com/profile/14120777723370461529noreply@blogger.comtag:blogger.com,1999:blog-1836248337575892827.post-54943471874773961042010-07-25T00:17:31.816-04:002010-07-25T00:17:31.816-04:00I went to camp one year when I was 10!! LOLI went to camp one year when I was 10!! LOLJenhttps://www.blogger.com/profile/00406895488412085461noreply@blogger.com