The New York Times has a great article, which you can read by googling "new york times cystic fibrosis" (The code link that I wrote in is no longer working), that discusses the CF patient registry and its impact on the treatment of CF. This month I wrote a poem that was sort of themed around feeling like a piece of "data" at the clinic, and it started some lively discussion on- and off-blog and twitter. This article explains the upside of all that data collecting, reviewing and discussing!
More later...
CG
The daily ponderings of Beth Peters as she writes about Cystic Fibrosis and lung trasnplant.
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Yo Old Friends! It's me, Beth Peters / CysticGal / the artist actually known as Mary ElizaBeth Peters . I am moving on from this bl...
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1. To the guy that broke up with me right after I got out of the hospital: You are cowardly, and selfish, and also bald*. 2. To the neighbor...
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I had a long doctors' appointment today and it did not go well. All of my shit came back shitty. Except some of my blood work was good. ...
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Dear CG Readers, I was having such difficulty deciding how to communicate with you again as everything unfolded over the past week and a hal...
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