The Upside of Being "Data"
The New York Times has a great article, which you can read by googling "new york times cystic fibrosis" (The code link that I wrote in is no longer working), that discusses the CF patient registry and its impact on the treatment of CF. This month I wrote a poem that was sort of themed around feeling like a piece of "data" at the clinic, and it started some lively discussion on- and off-blog and twitter. This article explains the upside of all that data collecting, reviewing and discussing!
More later...
CG
More later...
CG
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