I would like to share with you a seemingly hilarious video (as reported by my one-person sample viewer), of me from last night. It is extremely short.
One of the things one does post-transplant is take their Pulmonary Function Test on a small hand-held device, every day. I tend to get overly excited in my post-transplant life when my PFTs go up, because in my pre-transplant life, my PFTs were always, shall we say, sucky. My parents and doctors generally thought that I was “not good at the test” – whatever that means – because I never “blew” consistent scores (insert blue jokes here).
Now that I have new lungs, I seem to have a similar problem, but of course slightly different, enough to drive me a little nutso (like every other aspect of my body right now). I can make three consistent scores on a given day – which is typically how your “real” score is calculated- getting three scores that are within I think 5% of each other or something- but I get crazy-ass different scores from day to day. Grr. So sometimes I blow a really high score and then I think later that it was a fluke because I can’t do it again for 2 weeks, and similar with the low scores.
So, last night I had this really high score (for me as I rebuild) of 2.51 FVC and 1.88 FEV1, and then today the numbers went back down to 2.29 and 1.77. Grr.
I want the points. All the points. And though that represents about a 4% difference – it is annoying as certainly tomorrow it will go back up again.
Let the record show that today was also a prednisone step-down day to 10 mg /day – that’s my pre-tx dose!! SUPER. Next step- 7.5mg!!
Okay, latah playahs,