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Showing posts from May, 2010

Rock Star Lifestyle ... or Outfit

One of the only perks about being out of work right now (other than that I keep getting better and preparing for my transplant, ahem . . . ) is that I can feel the little voice in my/your/one's mind that says, "Am I dressed conservatively enough for work?" "Does this outfit look professional?" or "Do I need to add a sweater to this?" slowly dying away. I am using this time of my life to embrace the rock and roll fashions that I have always admired. (But, you know, don't have crazy expectations)

My Montage 5/30/10 at OneTrueMedia.com

Nifty Advertisement for Nifty CF T-Shirts Make photo slide shows at www.OneTrueMedia.com ORDER YOURS HERE!! http://cysticgal.blogspot.com/2010/05/t-shirt-time.html

On Natalia's Journey of a Lifetime

Recently, I was reading this post by the famous Natalia, from Canada, who prepared for and received her lung transplant while awaiting the birth of her daughter via surrogate. She hasn't written in a few months and thought that perhaps she would give up her blog altogether. Here is her posting: http://natandmarty.blogspot.com/2010/05/writing-for-gratitude.html regarding her feelings after transplant. In this post, she articulates a lot of the fears and anxieties that I have about the post-transplant experience. With the wonderful health and exuberant joy of breathing and living, comes a huge psychological shift that is hard to explain- but she does it very well. Here is the response I wrote to her:

Cliff, Put Down That Hoagie!

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You might be wondering, right about now - What does CG have to do with HH (Dr. Heathcliff Huxtible)? Well, I'll tell you. "Cliff," as we all know him, from The Cosby Show, had high blood pressure. His wife Claire, played by Phylicia Rashad (sp?), was the mighty police woman of all activities related to keeping his blood pressure down. Poor HH was forced by Claire to avoid the following activities because of his high bp: 1) Eating Hoagies (as seen above) 2) Competing in his college alumni basketball game 3) Dealing with his daughter Sandra's husband, Eldon 4) Seeing his daughter, Vanessa, practice her "dance routine" with her "dance group" in their outfits *no image available. 5) Playing a rousing game of plattonk with his out-of-town friend. 6) Watching horror movies on halloween with his daughter, Rudy. 7) Watching cowboy movies where people get shot a lot. Now, realizing that I don't really like hoagies and actually, salt is not a factor in

T-Shirt Time!!! PRICE REDUCTION!

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Now accepting orders for Cystic Gal and Guy T-Shirts! Price is dependent on orders received, but will be about $14 Click HERE for the Order Form UPDATE! Orders are flying for the shirts with NO TEXT on the front- so those are the ones I'm making!! In pink ladies' cut and gray regular t-shirt cut. * Gal shirts are in ladies' sizes and cut to fit ladies well :) **Guy shirts (all gray shirts) are in men's sizes, standard t-shirt cut. Click HERE to order! (no payment required until t's are ready to ship)

More Famouser

I just got the famous tweet ! Famous tweets to date: Leann Rimes Simon VanKampen Alex McCord (that makes an official Silex tweet) Suze Orman. I'm more famous every day. Yesterday, photo shoot with the amazing photog. Beth Rooney Upcoming hopeful stuff: article for the CF NewsWire, article maybe for Daily Southtown, interview maybe with NPR, interview maybe on transition (adolescent to adult) in CF. Book your time fast, America! More newsie and informative posts latah, playah. And yes, I am out of "jail" (the hospital). Almost time for my bipap nap. How time flies when you need a nap! Remind me to tell you about my new obsession with french toast, and how I actually ate 2 full orders of french toast (10 pieces of fr t) last week. This reaffirms my belief that the only way for me to gain weight is blatant binge eating as such. And with 12 pounds on in 2 months, it seems, I am correct! ok bai.

Fwd: New pictures from my KODAK Camera

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Today's fuzzy creature image. My cat waiting for me to come home.

Machine helps those waiting for new lungs‎ | KING5.com | Seattle Health News, HealhtLink

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    Powered by    * Please note, the sender's email address has not been verified.       I have talked about ECMO on the blog before - it is an end-stage measure they use to help patients make it to transplant if they're call doesn't come and they're in respiratory failure. I hope I don't ever have to use ECMO, but I'm glad that it exists and that one of my centers feels comfortable using it, and discussed it with me.             Click the following to access the sent link:       Machine helps those waiting for new lungs? | KING5.com | Seattle Health News, HealhtLink *      

Here is What with 32,000 Unique Visitors!

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First, the news. Yes, I am back in the hospital and yes, it's because my lungs are bleeding again. We're dealing with it. Gripes: I was supposed to spend much of the weekend with famed author and hometown homie Kathleen Rooney. I did get to see her reading at Brookline Booksmithe, but then it was ruined as I walked to dinner and had to duck into my car to cough blood into a plastic bag. Quelle Horreurre! (fr sp?) But, now in the big house. I have been quite lax on updating the StatCounter stats for you folks. So here goes! This image is less than ideal, but, to the right is 2010, and the left is 2009. So, overall, I have about 32,00o Unique IP Addresses tuning in. Only about half of them, 15,000, return regularly. Still, that's pretty great odds. The blog isn't for everyone! I have between 200 and 300 readers each day: Day Date Page Loads Unique Visitors First Time Visitors Returning Visitors Sunday May 23rd 2010 273 200 137 63 Saturday May 22nd

dream about swimmin'

I was writing to someone recently in the blogworld that I've been having a lot of dreams about swimming lately. I thought / think these are omens about my new lungs coming. Little know CG Trivia Fact- I was a swimmer when I was a kid, and a lifeguard and swim instructor in high school and college. That's right- I used to be healthy enough to save humans from drowning- and anyone from my lifeguarding class can attest that my lifeguarding teacher was possibly the fattest man ever seen in a bathing suit, and we had to do all our practices on him. Until I was about 20 my favorite thing to do was swim, and I loved to swim under water. Sometimes I would swim laps underwater. Same exercise. Double the fun. I thought these were dreams looking forward to my new lungs and I'll take deep breaths and let them out slowly and swim and swim and swim. Then I saw this commercial. Warning: sorta sad commercial. but very true. Am I just having these dreams about swimming because I cannot brea

Boston Invites You Along on Their Questionably Named 'Hot Dog Safari' || Jaunted

Boston Invites You Along on Their Questionably Named 'Hot Dog Safari' || Jaunted Posted using ShareThis

New pictures from my KODAK Camera

Here are some great pictures shared from my KODAK M580 Digital Camera. Sharing your life just got simpler. Just press share.

Here is What with the David Wallace

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Everyone on facebook wants to know, "why'd you change your profile pic to some random man?" This question comes from those who do not watch The Office, one of the finest shows on tv. Even in America. I changed my profile pic to be that of one David Wallace, the former CEO of Dunder-Mifflin, the fictitious paper company that was bought out by the more-fictitious Sabre office supply company, more hilariously headed by "Jo," played by Kathy Bates.  David Wallace, the former archetype of the caring, yet bottom-line-watching CEO, is now a shadow of his former self, having been let go by the company during its merger with Sabre.  During an episode this year, Michael Scott (Steve Carrell) goes for counsel with David Wallace over his new conflicts with Jo and the company's corrupt policies. Finding the formerly dapper, well-mannered, gracious and kind David Wallace in an unshaven, pajama-wearing, swearing state around his house, Michael Scott ends the episode announ