The New York Times has a great article, which you can read by googling "new york times cystic fibrosis" (The code link that I wrote in is no longer working), that discusses the CF patient registry and its impact on the treatment of CF. This month I wrote a poem that was sort of themed around feeling like a piece of "data" at the clinic, and it started some lively discussion on- and off-blog and twitter. This article explains the upside of all that data collecting, reviewing and discussing!
More later...
CG
The daily ponderings of Beth Peters as she writes about Cystic Fibrosis and lung trasnplant.
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Yo Old Friends! It's me, Beth Peters / CysticGal / the artist actually known as Mary ElizaBeth Peters . I am moving on from this bl...
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Tonight I got calls from CysticDad and CysticMommy saying that they are moving CysticGal to the ICU. She's just not breathing very well...
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1. To the guy that broke up with me right after I got out of the hospital: You are cowardly, and selfish, and also bald*. 2. To the neighbor...
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This'll be yet another quick post to hopefully launch me into posting more often. I finally arrived home on Thursday late afternoon, and...
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