Hello CGers!!! It's me. Boldly, bravely, I let my Dad bring me my laptop for tonight. I have been enjoying a computer hiadus, but wanted a little time to write to you y'all and doodle on internet. Who knew I could go a whole month without my laptop? WHO KNEW!?
Well, I've been busy. And tomorrrow is already my transplantiversary!! (one month). My surgery started on July 27th and ended on July 28th! I know there is a lot to explain about all that has happened but I'm not gonna handle all that tonight. Just recent news and such.
So, it looks like I hope to get out of the hospital next week if we can finally figure out everything with my lymphatic system. I started eating this week, and long and short, it agravated my lymphatic system a bit, again. (Not at all like before, but still, there was fluid retention and other random details.). So, 4 more day of IV nutrition and clear liquids for me, and then we'll try, I don't know, eating again. The IV nutrition keeps me going pretty good, I'm not even hungry except in my mind. - So alas, do not worry, I am not suffering in any sort of hungry way.
I simply cannot wait to go home and sit on my own couch, hang with my parents in my own house wearing my own clothes with less wires and crazy tubes coming off me, use my treadmill, eat some food, hang with my mom and do weird facials, go for a walk OUTSIDE!, sit on my porch with no O2, see my cat, see my cat, see my cat, walk to the grocery store, etc.
My lungs are superb. I think they are boy lungs, but who knows? They are strong and throughout this whole mess, they've been in tip top shape! My resting o2 is usuallly 97 or 98 but if often 100! When I exercise it is always 100 (that's right, it goes UP during my exercise). It has been dreamy to sleep with no bipap, and no oxygen on.
I am having way less pain in the past few days although we uncovered some of the reasons that I was having such erratic pain differences with excercies (another post for that, my friends).
The nurses at Brigham and Women's are f ing superb. I am in love with all of them. They are all so wonderful and fabulous at their jobs. I literally have only had like 3 momentary experiences where I was like, WTF was that? The rest of the entire month, every minute, it has been wonderful to be taken care of here.
With all of my problems, I am getting to know the team here very very well. So, now, instead of trusting just 2 of the docs, I trust about ... MOST of them. Which is wonderful.
I am so thankful to everyone who has been writing comments, emailing, and who sent postcards, even asking family and friends to send post cards. I must admit I got one creepy one, which will be the subject of a later blog post- but other than that - I still love them!! It's not too late to send one. It's crazy to realize where some of you bloggies live. I always think of you living 'IN COMPUTER." I guess that is incorrect.
My family and friends and all of you have been so amazing. I have never felt more loved and I appreciate every ounce of it.
So many posts to follow, but I'm giving my computer back tomorrow, so probably not another long one until I am home . . . ! I must stay in the zone of healing, walking, not eating (?) and such.
I have unguarded comments for now. Wish I had before my tx, but alas, I just did it. All of your comments will now appear moments after you write them without my review. Thus, I apologize for any spam/porn/random b.s. comments that appear. I will try to delete them.
q/a: Everyone wants to know some facts:
Do I still have chest tubes in? Yes, 5 bulb thingies.
Am I on o2? No.
How far am I walking? Only about 1/3 mile per day but that is a long long story and do not leave comments about it.
Did you walk up some stairs yet? Yes. It went well.
Are you still a rock star? Um, totally.