I don't have the energy to post all the update but just wanted to say hello. Things are progressing every day. A little better and a little closer to transplant. Still in the hospital. Don't know if I want to go home or not. Don't know if they want me to go home or not. A little sick of hearing every one say, "Obviously we don't expect you to make much improvement, but [insert thing they want me to accomplish anyway, even though they just told me I won't be able to do it.]"
But f that, I say. I walked for 10 minutes today and did not have a deep de-sat until I stopped walking. Down to 8L exercising, 4.5L resting.
Did my will and my power of attorney and all sorts of my "bidness" with my parents over the past few days.
Preparing for surgery. Making a music list to push on the surgeon because word on the street is, "He's into that."
Still enjoying Florence Nightingale Syndrome, hoping to further develop it for Tx team.
Still enjoying time in the cocoon I have made for myself that I am realizing is my family and my friends that are as close as family. Glad I made this cocoon and that it gets smaller and simpler everyday.
Now, to sleep. With Bipap.