Monday, March 29, 2010

Help Pass ClinicalTrials Bill for CF


The Cystic Fibrosis Foundation

Dear Advocate:

In the last few weeks, there have been several important developments both in health care legislation and in CF Advocacy. See what’s new and learn how you can get in on the action!

Legislative Update

New Health Reform Bill Includes Provisions that Impact People with CF

On Tuesday, March 23rd, President Obama signed into law a health reform bill that includes provisions that impact people with cystic fibrosis (CF).

While the Foundation has not taken a position on any particular health reform bill, we have strongly encouraged officials to include specific reforms that are important for the treatment of CF.

Learn about provisions in the bill that benefit people with CF.

Clinical Trials Bill Not Included in Health Reform -- Campaign to Pass Bill Continues

The Improving Access to Clinical Trials Act of 2009, which would allow people with CF who are on public benefits to participate in important research without losing their health coverage, was not included in the health reform bill that President Obama passed earlier this week. Your efforts to get support for this bill in Congress are more critical than ever! We will pursue passage of the legislation as a stand alone bill.

Help continue the momentum that has already brought an extraordinary 116 co-sponsors onto the House version of the bill:

Ask my members to pass the clinical trials bill in 2010!

Grassroots Update

CF Advocates March on Washington to Advance Foundation Agenda

On Thursday, March 11th, 35 CF Advocates from across the country met with members of Congress and Congressional staff as part of the Foundation’s annual March on the Hill event. CF Advocates shared their personal stories and asked legislators to support the Foundation’s public policy agenda. As a result, 5 new Representatives in the House signed on in support of the Improving Access to Clinical Trials Act of 2009, and 2 new Representatives joined the Congressional Cystic Fibrosis Caucus, putting the new total at 150!

Did you know?

Looking for a great way to introduce your family, friends, neighbors, and coworkers to the Cystic Fibrosis Foundation? Invite them to participate in GREAT STRIDES -- the Cystic Fibrosis Foundation’s largest national fundraising event. Every dollar raised is one step closer to a cure. Find a GREAT STRIDES walk near you and Register Today

Thank you for your support!

Mary B. Dwight
Vice President for Government Affairs
Cystic Fibrosis Foundation
(800) FIGHT CF

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