Friday, March 26, 2010

No-Go on Jess

So it's been a hard week of dry runs for the cystic gals. Piper's lungs were a-no-go, Jess' lungs were a-no-go. But CF Steph is kicking ass and taking names at the hospital where I go!!

Piper was quite eloquent in pointing out to all of us that when it is not our time, it is another person's time. Jess was quite silly in pointing out that 12 hours after being NPO, you are a ninja of hungriness and might just feel a little bit like, "No Lungs, No Peace." That is our mantra!! No matter how many times we text it, we get a giggle out of NO LUNGS, NO PEACE.

Also, "All we are saying, is give lungs a chance." That's pretty funny too.

Tomorrow is my poetry reading. I am super excited and only a wee bit nervous about it. Cookies will be served.

Today I had both doctors (cf and tx). Ugh. I don't know what continues to be so wrong with my brain. No matter how many times I go to the doctor, no matter how many times I think, "I will remain calm and polite at the doctor," it does not happen. If any little thing goes wrong (and 5 things always go wrong,) I get all panicky and sweaty and "don't touch me," and "please don't call me sweetie," and I just make the whole situation bad when it is actually just fine. I mean, I am so sick of myself about this issue. I cannot endure me at the doctor. Imagine my poor mother, the doctors and nurses, the PFT person!! I might as well wear a t-shirt that says, "I am a crazy biotch." I also get this really dark sense of humor that no one seems to enjoy but me. Ughie.

Public apology to all : I'm crazy at the doctor. I'm working on it! I'm freaking sorrrry!

Goodnight, CG


  1. Oh CG, we are thinking of you. And this made me think of a story that I think you'd like: Last night, I saw some of my students out at a bar, and they asked me the difference between "beach" (pronounced "beech" with their French accent), "bitch" (also pronounced "beech"), and "biotch." I did my best to explain. Then they asked me what "ya dig?" meant. Weirdly, I thought of you, because you would have done a much better job explaining those words to them, I think. Miss you.

  2. Ummm, CG? Reality check from someone who cares about you but does not have CF. So maybe I am not qualified, but you have enough to work on! Let's remember how perpetually upbeat, positive-thinking and determined you are. You are ultra-responsible with your medical care. Seriously, maybe you are bitchy at the doctor because you do not have your lungs yet, you do not feel good, lots of variables keep intruding on your plans, and you are just plain pissed off. You are so forgiving of other people - why not forgive yourself this small bit of cranky? I suspect that they all know why you are upset.

    In the past, your mood has been an indicator of how you feel physically, so it is my hope that they noticed that, too.

    Cut yourself a break, Missy!


  3. i would wear a shirt like that.
    and not even to the doctor.

  4. COOKIES!!!!!!!!! Yes! You have the right to bitch! NLNP!

  5. Yes, it has been a very crazy week. Please contact me if you have any questions. I feel like a pro! I didn't like any of my transplant clinic appointments before the transplant but post transplant everyone has been unbeliavable.


Thanks for commenting! Your comment will be posted ! -CG