Okay. So the other day I had the idea that I could write my book about CF and actually use the lyrics to the song "The Gambler" as the names of the chapters. This was the day that I wrote "Know When To Walk (away), Know When to . . . Walk."
So anyway, that's my silly idea of the day. That and the long joking conversation I had with Cystic Lady, my sister, about starting a family with another bloggy CFer. She and I were joking about marrying another CFer (which others have done, I knew a couple of couples growing up in UNDISCLOSED CITY, USA), and having babies. We were imagining the headlines, and articles:
Couple with CF Takes Advocacy To New Level: "We want a whole CF family!" says Cystic Gal. Ms. Gal married Cystic Homie at the age of 29, when they met and fell in love over blog.
They've Gone Too Far! A couple with Cystic Fibrosis says they plan to have 19 children and star in a reality show called "19 CFers and coughing," to increase awareness of the disease. Though every single one of the babies will be artificially conceived, due to the couples inherent fertility issues, the Fibrosises say they'r ready for the challenge! "We've lived through worse!" says Mister Fibrosis.
(the rest of the jokes got kinda shady so I won't post them here.)
Anyway, y'all that have been reading my Exercise Tracker might be wondering how I'm feeling. Just the same as yesterday. Having a bad time over here on Anywhere Street, USA. I'm at a point with my O2 saturation that is really frustrating, that has happened to me before. My resting O2 is really low without any supplemental O2, but then I wear just .5 or 1L, and it's great! 93! Conversely, I can have it cranked up to 4L and be doing some minor exertion, and be struggling to maintain a decent SAT. Cystic Lady talked me through some possibilities for helping with the oxygen conserver that I use during the day:
DID YOU KNOW YOU CAN PUT THE CANULA IN YOUR MOUTH? My recent tweeting investigation tells me that all the CFers with O2 knew this! I did NOT know. I will try it tomorrow!
DID YOU KNOW THAT ANEMIA CAN MAKE YOUR SATs DROP? Every month I go through this and my sister has to remind me to take some iron!
DID YOU KNOW THAT BEING IN A BAD MOOD ONE NIGHT IS A SURE FIRE WAY TO BE IN A BETTER MOOD THE NEXT? Oh wait, maybe that's just me.
Goodnight to y'all and a shout-out to all my homies in the lockdown ;) HA! I've always wanted to say that.
That, and "Pour one out for the homies." Though in this case, I'd have to pour out an Ensure while I said it.
Okay, that's enough.