Thank you for your curt reply and for your bolding of *your.* As I can indeed read, I was aware of the use of the word "your," but if I indeed could not read well, perhaps your email response would have been of assistance to me. Please reply if you would like to engage in a more rousing conversation or address my concerns more appropriately. Your cut and paste skills, however, are remarkable.
[I put my real name in the real correspondence, just fyi]
Subject: RE: [TAGGED] RE: Register for Web cast!
Date: Wed, 14 Jul 2010 14:33:04 -0400
Thank you for contacting the Cystic Fibrosis Foundation's National Office and for sharing your concern.
For more than 50 years, with the support of people like you, we have advanced the search for a cure. Today, thanks to remarkable scientific and medical breakthroughs, people with CF can now expect to live into their 30s, 40s and beyond.
This particular Web cast is tailored to both adults with CF as well as parents of children with CF. We will be featuring experts from both pediatric and adult care. Michael Boyle, M.D., F.C.C.P., Director of the Johns Hopkins Hospital Adult CF Program will be answering questions, among other doctor's working in adult care. This web cast will have "tips on working with your CF care providers to maximize your or your child's CF care."
We also have a Web Cast Library with numerous topics that are of concern to adults with CF: http://www.cff.org/LivingWithCF/Webcasts/ArchivedWebcasts
We hope this information is helpful to you, and if you have any more questions or concerns, please feel free to email us.
Cystic Fibrosis Foundation
Thank you for this email. However, recently I've been in ongoing conversations with CF patients about how/whether the CF Foundation is focused on serving its growing (thriving) adult community- this email is an example of how it does not. The premise of many/ most CFF emails that I receive are that the patient is a child, which is not wholly appropriate. Could there be a webcast with a similar theme for adult patients? Could the wording be altered so that parents are reminded that CF adults not only exist, but are the rule, not the exception?
Subject: Register for Web cast!
Date: Tue, 13 Jul 2010 10:54:54 -0400
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