from someone in their thirties or forties who's been involved with CF for 15 years tops in a sort of academic 9-5 way, when we've all been fighting it every hour of every day and night for 30 or 40 years in a sort of physical, kinesthetic, life and breath way, I want to tell that person to read this blog entry :
by a lovely Cystic Gal who really needs some support and just isn't getting what she needs from her non CFers and the g-damn internet.
And p.s., I'm waayyyy more likely to have gotten all of my bugs from the doctors that come in my room, insist on shaking my hand, sit down on my bed after they've sat on 100 other patient beds, dangle their germy ties in my face, or sloppily forget to wash their hands-wrists-stethoscopes, than I am to catch comething across a room from another CFer with a mask on.
And don't CFers still get together at the CFRI conference? And isn't there a big difference between going to camp in the 80s and doing our nebulizers in the same room all at once, and then sleeping side by side, than meeting for lunch once a freaking year to feel like you know someone who is at all like you- aren't those things different? AREN'T THEY?!
Okay, enough about that. I guess I'm ranty this July!