The daily ponderings of Beth Peters as she writes about Cystic Fibrosis and lung trasnplant.
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Yo Old Friends! It's me, Beth Peters / CysticGal / the artist actually known as Mary ElizaBeth Peters . I am moving on from this bl...
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I don't have the energy to post all the update but just wanted to say hello. Things are progressing every day. A little better and a lit...
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Dear CG Readers, I was having such difficulty deciding how to communicate with you again as everything unfolded over the past week and a hal...
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This'll be yet another quick post to hopefully launch me into posting more often. I finally arrived home on Thursday late afternoon, and...
Sorry to hear it was a no go. Hope you get some good news soon. (And hope you get that cheesburger!)
ReplyDeleteSorry it was a no go, but now you have experience in what to expect next time---------and it will come and I bet soon. I just love your attitude and enjoy your blog so much.
ReplyDeleteIf and when you have some energy, would you privately e-mail me and talk about your other center choices. Jamie has been evaluated at one and we are wondering if we should look into a second place.
Sending best wishes,
Linda in Louisiana
Mother of Mandy (with the angels) Kyle, Hunter and Brady wo/cf and Jamie 24 yom w/cf
ljc1948@gmail.com
It's been my experience - yours, too - that God, or whomever, ain't kidding any of us. A royal cosmic prankster/aka royal pain at his/her whim. No comprendo nada. Not a bit of it. Eat two cheeseburgers just for the HELL of it. xxoo
ReplyDeleteWasn't meant to be I guess! It's exciting that you're getting close. Hang in there :)
ReplyDeleteSorry that it was a false alarm but now you know that you are on the radar! Thinking of you!
ReplyDeleteor 8 cheezeburgers
ReplyDelete-@cdf12345
Thanks all, I am glad to be movin' on up, like the Jeffersons, to some deluxe lungs from the sky-y. AND I'll have you know I rewarded myself by sending all my laundry (2 bags) out to the laundry delivery guy, and ordering a huge batch of thai food. That, plus sleep and catching up on meds and airway clearance, and hopefully I'll wake up tomorrow back to normal.
ReplyDeleteLove love love, cg