It's a no go. Going home. Not to bad of am experience. Tired. More tomorrow. Love love and thanks for support!
Guest Blog by CysticLady: CF and Relationships Part II
Let me thank you for the nice comments on my first guest blog on Cystic Gal. I am also grateful to be able to have a forum to share these experiences. As such, I thought I'd write a follow-up. There is another side to this story. I will attempt to tell my version of it without using too many cliche's, but it may be hard because love is the most written and talked about topic in the history of the world. Love is a wonderful part of life. I think I can go so far as to say, it is the reason for life. It is indeed a real shame to go through such lengths as a lung transplant to continue living, to then deny yourself the chance for love. The same way that I weighed the risks vs. rewards of a lung transplant, is the way that I have to weigh the risks vs. rewards of love. I have said before that I'd do everything again, the whole year of dying, the surgery, the recovery, for just one of those days after transplant that I didn't have to think about breathing. Not
Sorry to hear it was a no go. Hope you get some good news soon. (And hope you get that cheesburger!)
ReplyDeleteSorry it was a no go, but now you have experience in what to expect next time---------and it will come and I bet soon. I just love your attitude and enjoy your blog so much.
ReplyDeleteIf and when you have some energy, would you privately e-mail me and talk about your other center choices. Jamie has been evaluated at one and we are wondering if we should look into a second place.
Sending best wishes,
Linda in Louisiana
Mother of Mandy (with the angels) Kyle, Hunter and Brady wo/cf and Jamie 24 yom w/cf
ljc1948@gmail.com
It's been my experience - yours, too - that God, or whomever, ain't kidding any of us. A royal cosmic prankster/aka royal pain at his/her whim. No comprendo nada. Not a bit of it. Eat two cheeseburgers just for the HELL of it. xxoo
ReplyDeleteWasn't meant to be I guess! It's exciting that you're getting close. Hang in there :)
ReplyDeleteSorry that it was a false alarm but now you know that you are on the radar! Thinking of you!
ReplyDeleteor 8 cheezeburgers
ReplyDelete-@cdf12345
Thanks all, I am glad to be movin' on up, like the Jeffersons, to some deluxe lungs from the sky-y. AND I'll have you know I rewarded myself by sending all my laundry (2 bags) out to the laundry delivery guy, and ordering a huge batch of thai food. That, plus sleep and catching up on meds and airway clearance, and hopefully I'll wake up tomorrow back to normal.
ReplyDeleteLove love love, cg